Who They Are

The Hearts for Ezra Foundation was started by Ethan Bessey and his wife, Emily, in honor of their son Ezra who passed away at 8 months old from Spinal Muscular Atrophy (SMA).  They had never heard of the disease and had no idea that you could be tested to see what they might be genetic carriers of.  They have set out with the mission to raise awareness of SMA and to do what they can to fight for a cure.

What They Do

The Hearts for Ezra Foundation was established with two primary goals; to help fund research in the hopes of finding a cure and to educate others about Spinal Muscular Atrophy.  They hope to help both individuals and care providers to better understand the illness, to know the support services that are available to them, and to have access to genetic testing that can identify you as a carrier before even conceiving a child.

Hearts for Ezra is 100% volunteer run and all of the money raised goes towards funding SMA research and raising awareness of the disease in the community.

How You Can Donate

The Hearts for Ezra Foundation is a 501 (c) (3) non-profit organization with a mission to “Raise Awareness and Fight For a Cure for Spinal Muscular Atrophy (SMA)”.  All donations are tax deductible and go directly to helping to achieve this mission.

Your donation is greatly appreciated and helps reach Hearts of Ezra’s goals of spreading awareness and fighting for a cure.

To help support this Best Ever Cause, please click the button below.