Who They Are
The INADcure Foundation is the only U.S. based nonprofit dedicated to the INAD community. Founded in 2016, it was formed to fund scientific research for treatments and a cure for Infantile Neuroaxonal Dystrophy (INAD) and other forms of PLA2G6-related neurodegeneration (PLAN).
INAD is an extremely rare, inherited degenerative disorder of the nervous system. It starts early in life and progresses rapidly. It usually develops between 6 months and 3 years of age. The first signs are often delays in developing skills, such as walking and talking. Often referred to as Parkinson’s combined with Alzheimer’s for kids, children will lose all acquired skills including mental and cognitive abilities, as seen in Alzheimer’s, and physical abilities, as seen in Parkinson’s, resulting in death likely before the age of 10. Currently there is no cure for INAD.
The Foundation works in collaboration with scientific advisors to identify the most promising INAD research projects for funding. In addition, the Foundation actively forges partnerships with academic institutions, biotechnology and pharmaceutical companies to accelerate the development of new and pending treatments.
The Foundation’s mission is to support the development of treatments, including a cure, for INAD. Its vision is to live in a world where INAD is effectively diagnosed, treated, and cured – so that not one more child has to suffer from this devastating disease.